People with albinism in Indonesia and around the globe?

Hello guys, I am a person with albinism in Bali, Indonesia. I feel called to establish an NGO or support group for these people. does anyone know the statistics of people with albinism in Indonesia and around the world . your suggestions are much appreciated , thanks, hv a nice weekend






Answer :
Albinism and/or Vitiligo occur in humans at a rate of approximatley 1 time for every 17,000 births. Therefore a country like Indonesia with a population of 240,271,522 has about 14,100 persons affected.

Support groups and organizations are available to help people learn more about vitiligo, understand treatment options, and find support from other people with vitiligo.

Vitiligo Support International is the largest vitiligo organization in the world. The non-profit organization provides free access to online message boards, chat rooms, frequently asked questions, information and articles, as well as a patient-referred doctor search. The group advocates on behalf of patients, conducts patient conferences and has local support groups.

The National Vitiligo Foundation (NVF) is focused on supporting medical and basic science research directed towards finding a cure for vitiligo, building public awareness of this disease, and providing information and support. Recently, the NVF has partnered with Vitiligo Friends to begin creating a social network for patients, friends, and family.

The American Vitiligo Research Foundation Inc. (AVRF) is a non-profit, tax-exempt charity that aims to increase public awareness about vitiligo and to help those affected by vitiligo, focusing specifically on children and their families. It supports finding a cure through alternatives to animal research.

The Vitiligo Society The Vitiligo Society is a registered charity and a company limited by guarantee. It is the only organisation which offers support and understanding to people with vitiligo and their families in the UK and the Republic of Ireland. The Vitiligo Society strives to support people anywhere in the world who asks for help and provides reliable information to the general public and health professionals about vitiligo and available treatment for the condition.

The Swedish Vitiligo Association is a support oraganization for all countries in the Scandinavia.

The VitiligoTURK is the first and only vitiligo support organization in Turkish Republic.

The Turning White Foundation was founded by broadcaster Lee Thomas, who suffers from the disease, as a support group for other sufferers



Try running a search on each of the above organizations for more detailed information.

Also the four links below will have more.

SD